A big blow

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After over two months of going back and forth with the insurance company for preauthorization for whole exome sequencing, we received a denial letter today, with the reasoning that it is “not medically necessary”. I am devastated, truly and utterly defeated. 

How can they say “not medically necessary”, like her symptoms don’t exist. Like it’s completely normal for a 16 month old to not be able to do basic things. For her to have nonstop movements, continuous wobbles, not to be able to sit without one arm planted on the ground to support her, even when in her high chair. She can’t stand without collapsing, even if you’re holding her. She can’t hold her bottle, she can hardly feed herself without dropping every other piece of food. She can’t pull to sit, or keep hold of her toys. She has very limited strength, and her posture has completely declined. She can’t make her kissy sound that she used to make at me constantly before all this happened. 

Not medically necessary. Something happened to our daughter four months ago next week, but we still have no answers and the one thing that could possibly shed light on what happened, has been denied by insurance. How is this even happening. 

My heart breaks for every single family who has had to endure anything like this, and the fact that there’s something that could give us answers and insurance is denying it. I’m speechless. Screw that, I’m not speechless, not anymore. I refuse to sit here and just watch my baby slip away. 

Comments

  1. MichaelNovember 29, 2021 at 7:26 AM

    You are not alone. Even though I've not experienced anything like what you and Pete are going through, my heart breaks for you. I don't know what more to say, but I am thankful you're sharing your story. Whatever I can do for you, just reach out.

    ReplyDelete

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